Staying Open to the Good
This past Sunday, I was scheduled to leave for 6 days to participate in a retreat called “Breakthrough,” where attendees are guided through 5 days of sequential steps aimed at…
Honest reflections and practical wisdom to help special needs parents feel seen, supported, and empowered—one story at a time.
This past Sunday, I was scheduled to leave for 6 days to participate in a retreat called “Breakthrough,” where attendees are guided through 5 days of sequential steps aimed at…
I was talking to another special needs parent the other day and an analogy came to me about what it’s like to raise a child with special needs. It’s not…
The OC Register captured what our family has learned the hard way: there is room for more life, even in the hard—and it’s meant to be claimed. Kennedy lives with…
I remember Kennedy’s first hospitalization at our local children’s hospital. She essentially had a bad cold, but because she could not cough effectively or clear her own lungs, she quickly…
We were sitting on a couch in a small office six months after my daughter’s diagnosis with a terminal neuromuscular disease. We had been asked to schedule this meeting by…
My children are drops of God in human Earth-suits. They are literally made of the stuff of God – as we all are. The fact that they have disabilities does…
On September 27th, my daughter and I had the honor of sharing the TEDx stage together at TEDx Temecula. It was a dream come true for both of us. For…
I remember crumbling to the ground when I learned that my 9-month-old daughter had been diagnosed with a terminal neuromuscular disease. She was playing on the baby mat just a…
We were about to board the Disney Wonder for a cruise to Alaska with my three-year-old medically fragile daughter and I was filled to the brim with emotion – terror…
I remember where I was sitting when my daughter told me that she wanted to do musical theater. She had seen me in a show a few months prior –…
It was our 8th cruise. We had just landed in Vancouver and were in a taxi on the way to the hotel – me, my daughter Kennedy, and her nurse. …
I spent my childhood, teenage, and young adult years in the arts – studying voice, dance, and theater. If you had ever asked me if I thought I would earn…
My daughter was just about as medically fragile as they come when she first expressed that she wanted to go to preschool in person. She was 4 years old and…
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